Comments on: MS brain MRI http://bushymills.com/2007/12/04/brainmri/ Ex South African engineer living and experiencing Brisbane, Australia Thu, 07 Oct 2010 10:33:10 +0000 hourly 1 http://wordpress.org/?v= By: bushy http://bushymills.com/2007/12/04/brainmri/comment-page-1/#comment-20 bushy Thu, 06 Mar 2008 21:20:04 +0000 http://bushymills.com/2007/12/04/brainmri/#comment-20 I went off Rebif in late December and haven't had any relapses. Initially I was told with Rebif I might get a headache and flu symptoms - what lies! I'm sticking to dietary changes which really help. I've found my triggers in coke cola and dairy products. Still some tingling in my legs but all seems better. I have hope in finding the recovery without drugs. I went off Rebif in late December and haven’t had any relapses. Initially I was told with Rebif I might get a headache and flu symptoms – what lies! I’m sticking to dietary changes which really help. I’ve found my triggers in coke cola and dairy products. Still some tingling in my legs but all seems better. I have hope in finding the recovery without drugs.

]]> By: mkns http://bushymills.com/2007/12/04/brainmri/comment-page-1/#comment-19 mkns Tue, 04 Mar 2008 16:57:01 +0000 http://bushymills.com/2007/12/04/brainmri/#comment-19 I'm not on any treatment of that kind for my MS, yet. I'm on a very low dose of amitriptyline which is just attempting to stop things being up and down on a daily basis (it really works, though). I've so far not had any symptoms bad enough to make me consider disease modifying drugs yet. And I'm hoping it stays that way for a loooong time. Sorry for not replying to your comment before, I hadn't realised you'd replied to mine (d'oh). I read your blog within Google Reader which kinda hides comments from me... I’m not on any treatment of that kind for my MS, yet. I’m on a very low dose of amitriptyline which is just attempting to stop things being up and down on a daily basis (it really works, though). I’ve so far not had any symptoms bad enough to make me consider disease modifying drugs yet. And I’m hoping it stays that way for a loooong time.

Sorry for not replying to your comment before, I hadn’t realised you’d replied to mine (d’oh). I read your blog within Google Reader which kinda hides comments from me…

]]> By: bushy http://bushymills.com/2007/12/04/brainmri/comment-page-1/#comment-8 bushy Wed, 05 Dec 2007 21:32:46 +0000 http://bushymills.com/2007/12/04/brainmri/#comment-8 Thanks mkns! I started with rebif injections 3x week treatment and this really sucks - especially the headache side effect. Thinking of focussing on diet changes. What treatment are you on? Thanks mkns!
I started with rebif injections 3x week treatment and this really sucks – especially the headache side effect. Thinking of focussing on diet changes. What treatment are you on?

]]> By: mkns http://bushymills.com/2007/12/04/brainmri/comment-page-1/#comment-7 mkns Tue, 04 Dec 2007 21:44:36 +0000 http://bushymills.com/2007/12/04/brainmri/#comment-7 It's a bugger going through all that. I went through that and more - it took over 2 years (potentially 5) to get to a diagnosis. It was clear to most that I had MS and it took 2 years to get the official diagnosis, but for the preceeding 3 I had other symptoms that now, looking back, were MS related too, but too vague to tell. So glad you got there quicker than me. Unless, of course, your story was seriously condensed! I had the brain MRI with the injections, but they burst my vein when doing it and told me this while I was still in the MRI machine so I couldn't move to see what was going on. Panic attack, really pretty bad stuff. Still, survivable. From one software engineer to another, albeit on the other side of the world, I know what you're going through, mate. Hang in there, you're not alone. It’s a bugger going through all that. I went through that and more – it took over 2 years (potentially 5) to get to a diagnosis. It was clear to most that I had MS and it took 2 years to get the official diagnosis, but for the preceeding 3 I had other symptoms that now, looking back, were MS related too, but too vague to tell. So glad you got there quicker than me. Unless, of course, your story was seriously condensed!

I had the brain MRI with the injections, but they burst my vein when doing it and told me this while I was still in the MRI machine so I couldn’t move to see what was going on. Panic attack, really pretty bad stuff. Still, survivable.

From one software engineer to another, albeit on the other side of the world, I know what you’re going through, mate. Hang in there, you’re not alone.

]]>